About Connor


Saving Connor from Saving Connor on Vimeo.


This is Connor, my nephew.


Connor is my brother’s only child.  He’s a beautiful 5 year old with a sweet disposition and an amazing way with any kind of gadget or computer.  He’s an avid swimmer, loves all things Ben10, and considers the little mermaid Ariel his girlfriend.

We just learned that he has X-linked hyper IGM.  This clinical sounding disease is a devastating immuno-deficiency.  The 1 in a million diagnosed with this condition usually succumb to liver cirrhosis or lung infection during childhood, the lucky few may survive into their mid-20’s.

 

Connor’s dad says Connor never complains about the many needles that the nurses poke him with during his monthly blood transfusions or about the innumerable flus, stomach aches and other infections he’s had since he was born. 


Before I learned about Connor’s disease, I never knew how risky and grueling a bone marrow transplant is.  Chemotherapy strips away the existing immune system to make room for the new immune system that a donor provides.  This is followed by 6 months post-operative isolation in a hospital room.

 

But it’s the only hope he has, the only known cure.

I’m asking one thing.  Please get your bone marrow typed and join a bone marrow registry.  Just go to www.marrow.org to register online (promo code teamconnor).  They’ll mail you a free kit with cotton swabs to collect a sample.   It's painless and doesn't cost anything but 10 minutes of your time.

 

Please help save Connor and others like him.  Thank you.

 

Michelle – Connor’s Aunt

 

How Can You Help?


1.  The most important thing you can do is join the bone marrow registry.  

     Join in person (Fastest way to get tested)
     Northern California (Asian American Donor Program)
     Southern California (A3M)

     All other US Locations

 

     Or Order a Free home test kit.  It's easy to join, painless and takes only 10 minutes.

     You can go to the following link http://join.bethematch.org/teamconnor


 2.  Get your friends, family and co-workers to join the registry.

      Tell others to register by going online at www.marrow.org (use promo code TeamConnor)

      

 3.  Become a fan of our Saving Connor Cause Page on Facebook and invite all your friends to spread the word.

 

 4.  Organize a drive.  It's easy to do and we can help provide logistical support through our relationships with non-profits who have experience organizing drives.  This can be done through work (sometimes in partnership with any existing blood drives that are done), church, college clubs, professional, social or other extra-curricular associations.


      Northern California (Asian American Donor Program - AADP)

      contact Ruby Law at ruby@aadp.org or call 510-568-3700

 

      Southern California (Asians for Miracle Marrow Matches - A3M)

      contact Sue Choi at schoi@ltsc.org or call 213.625.2802


      Rest of the United States

      contact NMDP's Office of Patient Advocacy at 888-999-6743


 5.  Donate money to Asian American Donor Program (AADP) or Asians for Miracle Marrow Matches (A3M).  Both are wonderful organizations.  We've worked closely with their staff to organize events on behalf of Connor.  Please attribute your donation to "TeamConnor" in the memo.

 

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